A tough day, here is my story

Remaining positive is a big piece of my wellbeing now.  If I let the sadness and negativity, of what I face every day, take over, I’d be a hot mess!  My anxiety will spike and it’s debilitating.  I just can’t let my mind lead me down that path…some days that is a very difficult task for sure!

What is it like to be allergic to so many food, plants and outdoor exposures….it sucks, but it’s been my life, all my life, and I have only had momentary glimpses of anything different.

As a small child, I was rarely healthy.  Until the age of 2, I was unable to drink milk or eat foods every child experiences at a young age.  To say my pallet is underdeveloped is likely an understatement.  I have a very difficult time with two food texture in particular-any type of ground meat and anything slimy/mushy.  Please don’t ask me to eat ground beef unless it’s hidden inside or among something else.  Spaghetti and tacos are a challenge…oh taco Tuesday I miss you!!!  I cannot even begin to describe the longing to have normal!

Since mid Sept 2017 I have had a horrific time with hives and my dermagraphia is at an all time overload!  Seeing a nutritionist was the catalyst for change.  She suggested that I go get blood work done.  My experiences with doctors this past 2 months have been unpleasant and very disappointing.  It doesn’t really seem like anyone REALLY cares about anybody anymore.  My first stop was my general practitioner.  I explained how my anxiety was on overload and I had intestinal discomfort.  She spent maybe 10 min with me, walked out and was not seen again.  The GP assistant came in with a referral to a GI doctor, a prescription for Prozac and I followed her into the lab for blood work.  I waited a week and then heard my blood work was in and I needed to come in for another test.  This other test pushed my anxiety even higher…I’m being told I have H Py what?  Hpylori is what they called it and it came back that I had it.  H Py is an intestinal bacteria that can cause many of my symptoms.  I don’t doubt that I had it at some point, but the second test they did came back negative.    Now what?  I have hives, I’m miserable and my anxiety is horrible.  I start the Prozac.

My hives continue to get worse, my anxiety continues to get worse and I feel my life spinning out of control.  I feel I’ve just gotten medicated instead of answers and solutions.  I switch doctors and stop the Prozac.  I’m having every adverse side affect to Prozac and my hives are a nightmare.  My new doctor sends me to an allergy doctor!

I go to my allergy doctor, the one I’ve used in the past.  I am prepared to have food testing done, so I’ve spent 5 days off any antihistamines and I’ve been miserable!  This doctor tells me she thinks I may have an autoimmune disease and refuses to test me for food allergies or any type of allergy.  She hands me a lab slip to be tested for Lupus, Thyroid diseases and Rheumatoid Arthritis.  I burst into tears in her office…I’m miserable with hives and want food testing!!!

A week goes by and I have spent enough time stewing.  I set up an appointment with another allergy doctor.  Although I feel the doctors today could be doing a much better job…I’m beginning to get answers.  He does a full body check for skin issues and a full allergy panel for foods.  He also schedules me to begin patch testing.

My test results are in during the appointment and guess what…not only did the prior allergist EPICALLY FAIL proper care and I reported her to the Director, but food allergies are BAD!!  Way worse than ever before.

  • Cantaloupe
  • Celery
  • Lettuce
  • Coconut
  • Wheat
  • Soy
  • Rice
  • Corn
  • Buckwheat
  • Barley
  • Lima Beans
  • Navy Beans
  • Bell peppers
  • Yellow/White grapes
  • Mustard
  • Peanut
  • Pecan
  • Black Walnut

You have got to be kidding me…what am I supposed to eat?  Do you have any idea how hard it is to avoid these items?  Corn is also known as dextrose, citric acid, vinegar and more.  Soy is in everything!  Rice…that is a substitute for most who are allergic to wheat and corn.  Eating is so hard and eating out is non existent.

Today, I just want a pass…a pass to have simple indulgences like celery with cream cheese or peanut butter and jelly on toast.

This is soooo incredibly difficult and I wish this upon no one.  Why can’t I just be normal???

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